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 carouselle rated 29 months ago -
My heart is just absolutley broken for this precious little boy and his parents and entire family. I can only hope and pray that God in His mercy will be with this family, that He will enable them to make the decisions that need to be made for Todd and that He will provide them with the comfort...
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11 Reviews
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- jamiet rated 15 months ago
- Holiday picture posted at blog.
Merry Christmas from the Daniels Family 2006
http://todddaniels.blogspot.com/2006/12/merry-christmas-from-daniels-famil y.html
http://todddaniels.blogspot.com/
Hi Everyone, I want to introduce you to my little 2nd cousin. His name is Todd. This little boy has a rare disease called Metachromatic Leukodystrophy. A brain disorder, which has no cure. It's onset is sudden, and it's progress is one of a debilitating nature. The prognosis, or outcome is not positive. I want to bring to light one of the lesser known diseases that get little publicity. I've been informed by Todd's aunt that he is not doing very well, and in fact he's getting worse. This sweet little boy, with the big blue eyes didn't deserve this. It angers me that something like this happens, but I feel powerless to do anything. I ask only one thing of my SU friends: give this page a thumbs up, or post it at your own personal blogs or web pages ( thanks in advance ), so it will circulate more. I want the word to get out about this disease. For more on Metachromatic Leukodystrophy, go to:
http://www.mldinfo.com/
Index of web site links:
Index of web site links:
http://odinslair.blogspot.com/2006/10/metachromatic-leukodystrophy.html
http://todddaniels.blogspot.com/2006/10/metachromatic-leukodystrophy-web-site.h tml
http://jamiet.stumbleupon.com/review/5962864/
- Xoria rated 28 months ago
- To say that my heart is broken for this precious child and his family is an understatement. I pray that God will give them all the strength they need during this horrific illness and to give them the discernment necessary to make the proper decisions.
Everyone needs to visit this site and read this family's story. Please keep them all in your prayers.
- carouselle rated 29 months ago
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My heart is just absolutley broken for this precious little boy and his parents and entire family. I can only hope and pray that God in His mercy will be with this family, that He will enable them to make the decisions that need to be made for Todd and that He will provide them with the comfort that He alone can give. Please visit this blog and give this family whatever you can in the way of encouragement and or your prayers.
Please take just a few moments and read this little story. It could change your life and possibly someone else's also.
Subject: a story we should all read
You make the choice! Don't look for a punch line; There isn't one! Read it anyway. My question to all of you is: Would you have made the same choice?
At a fundraising dinner for a school that serves learning disabled children, the father of one of the students delivered a speech that would never be forgotten by all who attended. After extolling the school and its dedicated staff, he offered a question:
"When not interfered with by outside influences, everything nature does is done with perfection. Yet my son, Shay, cannot learn things as other children do. He cannot understand things as other children do. Where is the natural order of things in my son?"
The audience was stilled by the query.
The father continued. "I believe, that when a child like Shay, physically and mentally handicapped comes into the world, an opportunity to realize true human nature presents itself, and it comes, in the way other people treat that child.” Then he told the following story:
Shay and his father had walked past a park where some boys Shay knew were playing baseball. Shay asked,” Do you think they'll let me play?" Shay's father knew that most of the boys would not want someone like Shay on their team, but the father also understood that if his son were allowed to play, it would give him a much-needed sense of belonging and some confidence to be accepted by others in spite of his handicaps.
Shay's father approached one of the boys on the field and asked if Shay could play, not expecting much. The boy looked around for guidance and said, "We're losing by six runs and the game is in the eighth inning. I guess he can be on our team and we'll try to put him in to bat in the ninth inning."
Shay struggled over to the team's bench put on a team shirt with a broad smile and his Father had a small tear in his eye and warmth in his heart. The boys saw the father's joy at his son being accepted. In the bottom of the eighth inning, Shay's team scored a few runs but was still behind by three. In the top of the ninth inning, Shay put on a glove and p layed in the right field. Even though no hits came his way, he was obviously ecstatic just to be in the game and on the field, grinning from ear to ear as his father waved to him from the stands. In the bottom of the ninth inning, Shay's team scored again. Now, with two outs and the bases loaded, the potential winning run was on base and Shay was scheduled to be next at bat.
At this juncture, do they let Shay bat and give away their chance to win the game? Surprisingly, Shay was given the bat. Everyone knew that a hit was all but impossible 'cause Shay didn't even know how to hold the bat properly, much less connect with the ball.
However, as Shay stepped up to the plate, the pitcher, recognizing the other team putting winning aside for this moment in Shay's life, moved in a few steps to lob the ball in softly so Shay could at least be able to make contact. The first pitch came and Shay swung clumsily and missed. The pitcher again took a few steps forward to toss the ball softly towards Shay. As the pitch came in, Shay swung at the ball and hit a slow ground ball right back to the pitcher.
The game would now be over, but the pitcher picked up the soft grounder and could have easily thrown the ball to the first baseman. Shay would have been out and that would have been the end of the game.
Instead, the pitcher threw the ball right over the head of the first baseman, out of reach of all team mates. Everyone from the stands and both teams started yelling, "Shay, run to first! Run to first!" Never in his life had Shay ever ran that far but made it to first base. He scampered down the baseline, wide-eyed and startled.
Everyone yelled, "Run to second, run to second!"
Catching his breath, Shay awkwardly ran towards second, gleaming and struggling to make it to second base. By the time Shay rounded towards second base, the right fielder had the ball, the smallest guy on their team, who had a chance to be the hero for his team for the first time. He could have thrown the ball to the second-baseman for the
- mrcclass rated 20 months ago
- There are so many families fighting these quiet struggles without enough support, without any medals. Prayer is good and they have mine. Spending billions less to make war and buying things we do not need and spending billions more to support kids and families would also be good.
- chimichurri rated 29 months ago
- Best explained by jamiet himself:
Hi Everyone, I want to introduce you to my little 2nd cousin. His name is Todd. This 8 year old boy has a rare disease called Metachromatic Leukodystrophy. A brain disorder, which has no cure. It's onset is sudden, and it's progress is one of a debilitating nature. The prognosis, or outcome is not positive. I want to bring to light one of the lesser know diseases that get little publicity. I've been informed by Todd's aunt that he is not doing very well, and in fact he's getting worse. This sweet little boy, with the big blue eyes didn't deserve this. It angers me that something like this happens, but I feel powerless to do anything. I ask only one thing of my SU friends: give this page a thumbs up, or post it at your own personal blogs or web pages ( thanks in advance ), so it will circulate more. I want the word to get out about this disease.
- ColinsFreakinDad rated 30 months ago
- Please take a moment and send your thoughts and prayers to this family as their little boy can certainly use them. I had to pinch the following from the site, and I'll warn you that the beauty of the actions of these young boys will make you cry, so you've been warned.
A story we should all read
You make the choice! Don't look for a punch line; There isn't one! Read it anyway. My question to all of you is: Would you have made the same choice?
At a fundraising dinner for a school that serves learning disabled children, the father of one of the students delivered a speech that would never be forgotten by all who attended. After extolling the school and its dedicated staff, he offered a question:
"When not interfered with by outside influences, everything nature does is done with perfection. Yet my son, Shay, cannot learn things as other children do. He cannot understand things as other children do. Where is the natural order of things in my son?"
The audience was stilled by the query.
The father continued. "I believe, that when a child like Shay, physically and mentally handicapped comes into the world, an opportunity to realize true human nature presents itself, and it comes, in the way other people treat that child.” Then he told the following story:
Shay and his father had walked past a park where some boys Shay knew were playing baseball. Shay asked,” Do you think they'll let me play?" Shay's father knew that most of the boys would not want someone like Shay on their team, but the father also understood that if his son were allowed to play, it would give him a much-needed sense of belonging and some confidence to be accepted by others in spite of his handicaps.
Shay's father approached one of the boys on the field and asked if Shay could play, not expecting much. The boy looked around for guidance and said, "We're losing by six runs and the game is in the eighth inning. I guess he can be on our team and we'll try to put him in to bat in the ninth inning."
Shay struggled over to the team's bench put on a team shirt with a broad smile and his Father had a small tear in his eye and warmth in his heart. The boys saw the father's joy at his son being accepted. In the bottom of the eighth inning, Shay's team scored a few runs but was still behind by three. In the top of the ninth inning, Shay put on a glove and p layed in the right field. Even though no hits came his way, he was obviously ecstatic just to be in the game and on the field, grinning from ear to ear as his father waved to him from the stands. In the bottom of the ninth inning, Shay's team scored again. Now, with two outs and the bases loaded, the potential winning run was on base and Shay was scheduled to be next at bat.
At this juncture, do they let Shay bat and give away their chance to win the game? Surprisingly, Shay was given the bat. Everyone knew that a hit was all but impossible 'cause Shay didn't even know how to hold the bat properly, much less connect with the ball.
However, as Shay stepped up to the plate, the pitcher, recognizing the other team putting winning aside for this moment in Shay's life, moved in a few steps to lob the ball in softly so Shay could at least be able to make contact. The first pitch came and Shay swung clumsily and missed. The pitcher again took a few steps forward to toss the ball softly towards Shay. As the pitch came in, Shay swung at the ball and hit a slow ground ball right back to the pitcher.
The game would now be over, but the pitcher picked up the soft grounder and could have easily thrown the ball to the first baseman. Shay would have been out and that would have been the end of the game.
Instead, the pitcher threw the ball right over the head of the first baseman, out of reach of all team mates. Everyone from the stands and both teams started yelling, "Shay, run to first! Run to first!" Never in his life had Shay ever ran that far but made it to first base. He scampered down the baseline, wide-
- Thar rated 30 months ago
- A wise man once said,"Every society is judged by how it treats its least fortunate amongst them."
This is worth your time.
- twistedelegance1 rated 30 months ago
- It takes only a moment for the spirit to spread optimism - please take a moment now for Todd, and his cousin and fellow stumbler Jamiet.
God bless
- rumisong rated 30 months ago
- there are healings in this world that are needed -
healings of the body -
healings of the spirit -
a dear stumbler friend set up this sight to engage some of that healing for a member of his family - I think a visit and a read - and a thumb up - will go far to move this humanity-spirit, to where the healing medicine is...
- D-dave-superhero rated 30 months ago
- I place this on my pages as a mark of deep respect for the courage and dedication of a loving family and a young lad who was dealt a very rough hand. My thoughts are with you Todd, and I wish you and your family all the luck in the world. My own family will be thinking of you too.
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