Website review: Disabled girls parents defend growt...
Someone discovered this in Disabilities
•19 reviews since Mar 12, 2008
disabilities, health, ethics
•cnn.com/2008/HEALTH/conditions/03/12/pillow.a...
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Reviews of this website
Anndaluz rated 4 months ago- This is currently incorrectly categorised as mental health. There are issues here rather more intractable than those raised by eg schizophrenia - generally agreed to be the most severe mental illness. The majority of people with such an illness either recover or are able to live fulfilling lives with some medical, psychological or practical support. Ashley is a child with multiple and profound disabilities as a result of extremely severe cerebral palsy. She cannot move, has to wear nappies and has a mental age of six months: there is no prospect of recovery. Her parents decided on a course of treatment to prevent her reaching sexual maturity. They have a blog which you can link to on this site. Their decision has caused great controversy.
I can't imagine doing this to a child and I can't imagine what it is like to be in the parent's position. It's obvious that many of the people who've expressed some dogmatic views here haven't even tried.- This is currently incorrectly categorised as mental health. There are issues here rather more intractable than those raised by eg schizophrenia - generally agreed to be the most severe mental illness. The majority of people with such an illness either recover or are able to live fulfilling lives with some medical, psychological or practical support. Ashley is a child with multiple and profound disabilities as a result of extremely severe cerebral palsy. She cannot move, has to wear nappies and has a mental age of six months: there is no prospect of recovery. Her parents decided on a course of treatment to prevent her reaching sexual maturity. They have a blog which you can link to on this site. Their decision has caused great controversy.
- digits rated 4 months ago
- The reviewers of this article...God. You think these parents just decided one day, "Hey! Let's remove our girl's breasts and female organs to make it easier on us!" I really think the decision was made with a lot of hard thought as well as practicality.
The poor girl can't even move on her own. What? She needs to bleed and be a "mother potentiate" with breasts and ovaries for 60 years? Right. Okay.
Yes. Because surely what the caregivers now need is to deal with her feminine period every month as well as her bulging boobs that will have no place in society on any social level or practical level. [In other words, her boobs will never serve to get her a date, improve her self-esteem, or for baby food. And her baby making equipment will never be needed - much less be missed by her.]
You judgemental yaks. Why don't you start with the premise that these parents love their child and DESERVE to have it easier on themselves to care for her? I give them credit for not shipping her off to a state-sponsored facility - to start with - by God. - The reviewers of this article...God. You think these parents just decided one day, "Hey! Let's remove our girl's breasts and female organs to make it easier on us!" I really think the decision was made with a lot of hard thought as well as practicality.
- Fidi rated 4 months ago
- This country seriously lacks discussion on what QUALITY OF LIFE means. Pillow-angel? Eewwwwww. Thanks to American religious nuts, abortion, suicide/assisted suicide, and living wills are evil, but stuff like this is a-ok. Yuck. I understand from the caretaker point of view, but still... Didn't these parents have prenatal testing? It seems to seriously call into question medical ethics and I am utterly surprised this was done in Seattle considering the reputation of local health care providers and educators. But hey, if making life easier for caregivers and health care providers is the goal, why not just start starving the fat patients? Impressed, I am NOT.
- ihateevanthomas rated 4 months ago
- Good question.
- laptopnurse rated 4 months ago
- I have taken care of children like this. The children I took care of often had severe respiratory problems and were on ventilators which breath for them. They have to have their position changed every two hours, and a lot of other complicated care. The fact that they were able to stunt her growth and sexual characteristics meant that they have reasoned out what it will be to take care of this child for the rest of their lives. What happens when the parents pass on? These kids grow up and become heavy weights on a back ward of some nursing home, and still have to be turned and cared for. This can test the patients of a saint. Skin breaks down under their own weight and things can get really messy. I have seen it with rational patients. The Ashley treatment for hopeless children makes sense. Hurray for them and I support their choices.
- seekerpat rated 4 months ago
- You need a license to drive a car. Reading this makes me think one should be required to become a parent. It seems to me their decision was less about improving the child's quality of life than improving their own. And this sets a morally repugnant precedent and is an ethically slippery slope. Its not too far a conceptual leap from surgical procedures(to ease the care of the disabled) to euthanasia(to ease the burden on the state/parents/whoever). Think I'm being extremist? Remember there were forced sterilizations of the "feeble minded" in this country up to 1964...google Eugenics in America
- Stumbleine33 rated 4 months ago
- i understand where they're coming from. i know what it's like to take care of someone who's disabled. but i don't think i could do the same thing to my relatives.
- ncameron52 rated 4 months ago
- A lot of people seem to think this is cruel and immoral, but really this child's quality of life has probably been greatly improved by the decision of her parents. As someone who works with individuals who are developmentally challenged, I can attest that caring for clients with a lot of height or weight on them, but who have limited or no mobility, makes it difficult. Care can be heavily compromised in individuals who have no mobility, especially in terms of hygiene and the risk of developing pressure sores. I don't think the parents would have come to this decision lightly, and I doubt the medical team would have consented to performing these surgeries unless they were sure the parents were choosing this for the right reasons.
- Twipod rated 4 months ago
- I agree with Kieranical... its interesting medical ideas... but please leave the morality and holier than thou crap out of other peoples' families.
